QUALITY OF LIFE IN THALASSEMIA MAJOR PATIENTS: RELIABILITY AND VALIDITY OF INDONESIAN VERSION OF TRANQOL QUESTIONNAIRE
ABSTRACT: To determine the
validity and reliability of TranQol questionnaire that has been translated into
Indonesian to be used in Indonesian thalassemia major patients. The quality of
life problems among these patients can be detected earlier because TranQol is
more precise compared to the Pediatric Quality of Life Inventory (PedsQLTM),
World Health Organization Quality of Life Instruments (WHOQOL), and SF-36
Questionaire.
Methods: This study was conducted in Bandung, Indonesia from October 2015
to March 2016 and used a standard “forward-backward” translation procedure. It
involved 60 adults and 73 children who are thalassemia major patients, and 71
parents of patients in Dr. Hasan Sadikin General Hospital. TranQol was
processed through forward and backward translation approach and evaluation was
conducted by the TranQol author. After the translation process, a cognitive
debriefing was performed and the translated TranQol was tested to all subjects.
Results: Cronbach’s alpha >0.7 was used for all TranQol categories.
Front validity and content validity testing was performed. The internal
validity results showed that some questions were not valid.
Conclusions: TranQol reliability in Indonesian language for every
category is good. Validity for TranQol in Indonesian language shows that the
translated TranQol is not quite suitable that it still cannot be used.
Keywords: TranQol Indonesia,
validity Indonesia, reliability Indonesia
Penulis: Billy Ng Setiawan
Rachmat Poengoet, Ellyana Sungkar, Tri Damiati Pandji
Kode Jurnal: jpkedokterandd170261
