KONSEP DIRI PENDERITA HEMOFILIA DI PEKANBARU DALAM PERSPEKTIF FENOMENOLOGI
Abstract: Hemophiliacs in
Pekanbaru, with all the limitations that they have still capable to perform and
complete their daily chores that require physical activity. For hemophiliacs,
doing physical activity just like people in general will be harder, because
when they do those physical activities, the joints in some parts of their body will
ache and raise the bruises, this is caused by a lack of blood clotting factor.
This study aims to determine the components of perceptual , conceptual
component , the component attitudes, and communication experience hemophiliacs
in Pekanbaru
This study uses qualitative research methodology by conducting
phenomenological approach. Subjects in this study consist of five people. Data
collection techniques are grouped into three sections, which are; in-depth
interviews, participant observation, and documentation. This study uses the
Miles and Hubermen model of interactive data analysis system, by using the
validity checking technique of the data through the extension of participation
and triangulation.
The result of this study showed that people with hemophilia in Pekanbaru
if we look from the positive side of its perceptual components are just like
people in general, they are cheerful, comfortable with their environment and
there is no sense of shame, while its negative side is they sometimes less
grateful and feel embarrassed. In the view of the positive side of its
conceptual components, hemophilia sufferers tend to be responsible, humorous,
rarely feel sad and often confident, but its negative side can be seen from a
more reserved attitude. Then, focusing on the attitude component, the positive
side which is owned by hemophiliacs is their friendly act, pleasant and
helpful, but the fear of being alienated is the negative side of the patient.
Meanwhile, based on the experience of communication, hemophiliacs in Pekanbaru
have been able to implement a good and pleasant communication such as a sense
of pride and pleasure, acceptance and friendship and more attention from the
family, but there is a little less pleasant communication experience such as a
fear of the opposite sex, discrimination and verbal or non-verbal harassment.
Penulis: Abednego Tumei Abram,
Welly Wirman
Kode Jurnal: jpkomunikasidd150411
