THE EXPERIENCE OF STROKE SURVIVORS IN BANDUNG, INDONESIA

ABSTRACT: This  study  was  designed  to  explore  the  experience  of  stroke survivors  in  Bandung,  Indonesia.  The  objectives  of  this  study  were  to:  (1) describe  the  meaning  and  feelings  of  being  a  stroke  survivor,  (2)  describe  the impact  of  the  stroke  on  the  survivor's  life,  and  (3)  describe  the  needs  of  stroke survivors.  The  participants  were  10  stroke  survivors.  Three  types  of  data collection tools were employed: a demographic data form, the Barthel Index, and an  interview  guide.  Data  analysis  used  thematic  analysis  as  suggested  by  van Manen (1990).  The findings demonstrated four main themes of meaning of being stroke  survivors:  being  obedient  to  the  doctor,  regressing  to  childlike  status, being under supervision and assistance, and being tested from God (Allah). The findings  demonstrated  five  main  themes  of  feelings  of  being  a  stroke  survivor: uncertainty  about  hope,  being  bound  at  home,  dependent  on  someone, powerlessness,  and  low  self-confidence.  The  impacts  of  stroke  on  the  survivor’s life  were  identified  as:  being  unable  to  be  active,  having  to  adjust  to  emotional changes,  being  unable  to  undertake  social  activities,  failure  to  fulfill  former responsibility, and enhanced in spiritual life. In addition, three themes were found as  stroke  survivor’s  needs:  information,  understanding  and  attention, joyful/leisure  time,  and  choices  of  therapy.  The  findings  will  benefit  for  the improvement  of  health  care  system,  education,  administration,  and  research  in the area of stroke rehabilitation, prevention, and promotion.
Key Words: stroke survivor, meaning, feeling, impact, and need
Penulis: Cecep Eli Kosasih
Kode Jurnal: jpsosiologigg060005

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